Bobby and Robert
Almost a year ago, a day before I got my diagnosis, I was introduced to Bobby, a fellow pancreatic cancer survivor who ended up being one of the most significant friends in my life.
He entered hospice care a few weeks ago, and sadly passed away on August 25th. He fought bravely for nearly two years after his diagnosis, and his memory will always be cherished. I will forever be grateful to him for guiding me through this daunting process especially in the beginning. His encouragement, support, and the understanding he offered, from his own experience as a fellow patient, was so greatly appreciated.
It was a difficult week in that we also lost another friend, Robert, to pancreatic cancer as well. His fight lasted only a few months. While I didn’t know him as well, I had been in touch with him since early in his diagnosis trying to offer information, encouragement, and empowerment.
They were both men of faith and please keep their loved ones in your thoughts and prayers during this difficult time.
Hospitalization
A few weeks ago, I had to go to the hospital due to some shortness of breath. After I was checked out, they admitted me as they wanted to monitor me carefully because of my chemotherapy and clinical trial status. Thankfully, I only had to stay one night. The cause wasn’t specifically determined, but they ruled out a lot of things, including cardiac related and other issues.
Lights of Hope
Laura, the NP at my first oncologist’s office, invited me to an Event on Sunday which is a cause dear to her heart. She has been fundraising and advocating for cancer patients for years. I didn’t know her own personal story, much less that she was #2 nationally fundraising in 2023!
Miranda at Laura’s office made me my own bag!
The event was very moving especially with the recent passing of my friend. It affected me more than I thought it would.
I spent most of the day talking with survivors/patients, passers-by, medical workers, ACS coordinators and a few dogs. While trying to be respectful to the focus of the event, I prayed for a few people on the side. Seeing the lights in the bags at night was a beautiful way to end the evening for a worthy cause.
CT Scan
Since I began this immunotherapy clinical trial, my tumor has not only stopped growing, but has decreased in size.
My tumor marker numbers have also decreased each time over the past four tests. While the reduction was modest this last time, it’s the overall trend that matters.
In all honesty, I do think it’s a combination of prayer, medical providers and resources available to me.
I will continue to say that this aggressive, adaptive cancer can turn on a dime. But, in a world where people can have very difficult paths and outcomes within a matter of weeks, I agree that you have to celebrate the wins when you’ve got them.
The emotional impact of losing friends, being encouraged and supported by organizations like Lights of Hope and other cancer-related networks, and receiving positive news for a CT scan truly epitomizes this year since my diagnosis. It often feels like a whirlwind of conflicting emotions all at once.
Thanks
I appreciate those of you who have tried to stay in touch by reading the blog. It’s the easiest way for me to update everyone on what’s been going on.
Prayers
Bobby’s and Robert’s families at this time. I’m praying for their grieving, and especially for Bobby’s young boys. I hope they’ll know what a special man he was to so many.
My side effects. The side effects haven’t been severe, but fevers and shortness of breath sometimes necessitate a visit to the emergency department just to play it safe.
Continued good results from my treatment. I’m deeply thankful for the positive progress and hopeful that this clinical trial will produce an additional effective tool for treating pancreatic cancer.
I’ve been living with this disease for a year now, and it has been the most challenging year of my life, affecting my body, priorities, income, and focus. I am determined to remain productive while staying mindful of my health. I want to make the most of every moment and be in the best possible shape to manage this situation.
I appreciate your continued prayers and support.
Thanks again,
P
